This research project developed a substantial amount of resources on Advance Care Planning (ACP) for use in both home care and health care sectors. The resources focus on individuals, families and professionals and the specific needs of people with dementia.
Many of the resources are available on the Dementia Australia webpage. The resources include planning across a range of financial, health, lifestyle and personal issues including preparation of wills, power of attorney and nomination of substitute decision makers.
With advanced care planning a person’s capacity to make their own decisions needs to be assumed unless there is evidence to the contrary. The report outlines seven key recommendations to improve the uptake and quality of advance care planning for individuals, government and institutions.
Report
- Future Planning and Advance Care Planning. Why it needs to be different for people with dementia
- Companion document – Future Planning and Advance Care Planning. Why it needs to be different for people with dementia
Resources
Individual planning
These booklets support individuals in planning ahead:
These brochures support substitute decision makers:
- Supporting a person to make their own decisions
- Can they decide for themselves?
- When you need to make a decision for someone
- Who will speak for you if you can’t?
Mandarin
- 助他人作出自己的决定 (Supporting a person to make their own decisions)
- 他们可以自己作决定吗?(Can they decide for themselves?)
- 当您需要为他人作决定时 (When you need to make a decision for someone)
- 如果您不能为自己说话，谁可以呢? (Who will speak for you if you can’t?)
Italian- Italiano
- ssistere una persona a decidere per proprio conto (Supporting a person to make their own decisions)
- Possono decidere per se stessi? (Can they decide for themselves?)
- Quando si deve prendere una decisione per qualcuno (When you need to make a decision for someone)
- Chi parlera’ in vostra vece se non riuscite a farlo voi? (Who will speak for you if you can’t?)
Arabic
- (Supporting a person to make their own decisions)دعم شخص ما لإتخاذ قرارته بنفسه
- (Can they decide for themselves?)هل يمكن أن يقرروا لنفسهم؟
- (When you need to make a decision for someone) عندما تحتاجون لإتخاذ قرار لصالح شخص ما
- (Who will speak for you if you can’t?)من الذي سوف يتكلم عنك إذا كنت لا تستطيع؟
Health care sector
To aid community, health, aged care and continuing education sector organisations in conducting community education and awareness sessions, see the resources below and the Framework Document that outlines principles to implement advanced care planning in community settings.
- Planning Ahead including advance care planning: A facilitator’s guide
- Case studies: Planning Ahead including advance care planning and substitute decision making
- Scenarios: Planning Ahead including advance care planning and substitute decision making
- Planning ahead including advance care planning presentation template
- Planning ahead including advance care planning video and podcasts
These resources are particularly useful for residential aged care and palliative care:
- Guide to implementing sustainable systems for advance care planning
- Advance care planning continuum of practice model
- The advance care planning continuous quality improvement audit tool
- The advance care planning continuous quality improvement guide
Contact
Videos (series of videos available as playlist-click play link on top left of video to view)
Our dementia research
The CDPC focuses on developing evidence-based guidelines and tools to implement best practice dementia care in the clinical, care and community environments on these themes: